Saturday, January 22, 2011

God's Gift of Peace

I wrote this post a few weeks ago except for the last few lines. I found it tonight as I was checking over my blog for unfinished posts and felt that it needed to be published. I hope it brings you enjoyment and a deeper understanding of parenting a special needs child.

This past week I faced a very difficult situation--my Sweet G had tendon lengthening surgery. I had peace through the entire experience. I can't explain it because I really don't understand it myself. I first began to experience this kind of peace on the day that I found out I was going to be G's mom. I remember vividly the moment it first happen. I was standing in the parking lot of a restaurant dressed as Scribbles the Clown. It was a cool evening in March. I stood talking to my husband J, our son T, and B the precious woman who picked us to be the family of our Sweet G.

G was born prematurely and B was filling us in on all that had happened since his birth. She told us that he had been born with cocaine in his blood. His birth mother had not received prenatal care and was unsure of exactly how far along in her pregnancy she had been. When she started to tell me about his story I knew that this baby would have problems although all the specialists said the chances were good that everything would be okay. I wasn't sure what issues the baby would face but I remember thinking, " I don't know if this is something I can do." Almost immediately I was reminded that this child was a miracle that we had spent years praying for. I also knew without a doubt that his birth was orchestrated by God, down to the last detail. Standing there in that parking lot God said, "This is the gift you have prayed for. I am offering him to you. The question is will you trust me and accept my gift?"

"Who am I to question the gift God is offering me? How do I say that isn't the gift I want and that It isn't good enough?" These thoughts hit me like a ton of bricks and I felt ashamed that I would consider throwing God's gift back in His face. I told myself that all God's gifts are good and that if this is the gift He offered then I would trust him. I didn't share any of these things with anyone else. I just talked to God and pondered them in my heart, kind of like I imagine Mary the mother of Jesus did when she thought of his future.

I was immediately filled with peace that comes only from God. That peace has stayed with me as we faced acid reflux testing, eye surgeries, developmental delays, the diagnosis of cerebral palsy, the two years we waited for G to take steps with the assistance of a walker, almost 8 years of specialists (too many to remember at times), 7 years of therapy, and years of daily stretching. Through all of it there was always the unknown looming before us. Will he ever walk unassisted or at all for that matter? Will today be the day he starts to have seizures? What does the future hold for this precious child God entrusted us to raise? Through it all there has been peace.

Do I get discouraged, tired, and frustrated--of course I do. I don't, however, lay awake at night worrying about whether G will be independent. God is constantly reminding me that He has this under control. All he wants me to do is stand right where He put me trusting Him to give me strength to withstand whatever He chooses for G. That is all he wants from any of His children--trust and obedience. So if you ever wondered how a parent of a special needs child manages life I can tell you that we do it like everyone else-one day at a time. Disability is a scary, terrible thing to most people looking in but the view from where I stand is amazingly beautiful, magical, and rewarding unlike anything you can imagine.

Notice

I am tired of living my life to please others. I have had all I can take of defending my relationship with Christ. I refuse to stand silently by while those close to me try to defend and excuse their sinful behavior. I'm through trying to censor the vile opinions and comments from people unwilling to respect my choices for my children. If my morals cannot be respected my child will no longer be part of your life. I am tired of being treated as the unruly child when I am the one in the right. I put you on notice satan I am going to call out sin when I see it. I am through dancing around the feelings of those living sinful lives. You have officially been put on notice.

God's Gift of Peace

I wrote this post a few weeks ago except for the last few lines. I found it tonight as I was checking over my blog for unfinished posts and felt that it needed to be published. I hope it brings you enjoyment and a deeper understanding of parenting a special needs child.

This past week I faced a very difficult situation--my Sweet G had tendon lengthening surgery. I had peace through the entire experience. I can't explain it because I really don't understand it myself. I first began to experience this kind of peace on the day that I found out I was going to be G's mom. I remember vividly the moment it first happen. I was standing in the parking lot of a restaurant dressed as Scribbles the Clown. It was a cool evening in March. I stood talking to my husband J, our son T, and B the precious woman who picked us to be the family of our Sweet G.

G was born prematurely and B was filling us in on all that had happened since his birth. She told us that he had been born with cocaine in his blood. His birth mother had not received prenatal care and was unsure of exactly how far along in her pregnancy she had been. When she started to tell me about his story I knew that this baby would have problems although all the specialists said the chances were good that everything would be okay. I wasn't sure what issues the baby would face but I remember thinking, " I don't know if this is something I can do." Almost immediately I was reminded that this child was a miracle that we had spent years praying for. I also knew without a doubt that his birth was orchestrated by God, down to the last detail. Standing there in that parking lot God said, "This is the gift you have prayed for. I am offering him to you. The question is will you trust me and accept my gift?"

"Who am I to question the gift God is offering me? How do I say that isn't the gift I want and that It isn't good enough?" These thoughts hit me like a ton of bricks and I felt ashamed that I would consider throwing God's gift back in His face. I told myself that all God's gifts are good and that if this is the gift He offered then I would trust him. I didn't share any of these things with anyone else. I just talked to God and pondered them in my heart, kind of like I imagine Mary the mother of Jesus did when she thought of his future.

I was immediately filled with peace that comes only from God. That peace has stayed with me as we faced acid reflux testing, eye surgeries, developmental delays, the diagnosis of cerebral palsy, the two years we waited for G to take steps with the assistance of a walker, almost 8 years of specialists (too many to remember at times), 7 years of therapy, and years of daily stretching. Through all of it there was always the unknown looming before us. Will he ever walk unassisted or at all for that matter? Will today be the day he starts to have seizures? What does the future hold for this precious child God entrusted us to raise? Through it all there has been peace.

Do I get discouraged, tired, and frustrated--of course I do. I don't, however, lay awake at night worrying about whether G will be independent. God is constantly reminding me that He has this under control. All he wants me to do is stand right where He put me trusting Him to give me strength to withstand whatever He chooses for G. That is all he wants from any of His children--trust and obedience. So if you ever wondered how a parent of a special needs child manages life I can tell you that we do it like everyone else-one day at a time. Disability is a scary, terrible thing to most people looking in but the view from where I stand is amazingly beautiful, magical, and rewarding unlike anything you can imagine.

God's Gift of Peace

I wrote this post a few weeks ago except for the last few lines. I found it tonight as I was checking over my blog for unfinished posts and felt that it needed to be published. I hope it brings you enjoyment and a deeper understanding of parenting a special needs child.

This past week I faced a very difficult situation--my Sweet G had tendon lengthening surgery. I had peace through the entire experience. I can't explain it because I really don't understand it myself. I first began to experience this kind of peace on the day that I found out I was going to be G's mom. I remember vividly the moment it first happen. I was standing in the parking lot of a restaurant dressed as Scribbles the Clown. It was a cool evening in March. I stood talking to my husband J, our son T, and B the precious woman who picked us to be the family of our Sweet G.

G was born prematurely and B was filling us in on all that had happened since his birth. She told us that he had been born with cocaine in his blood. His birth mother had not received prenatal care and was unsure of exactly how far along in her pregnancy she had been. When she started to tell me about his story I knew that this baby would have problems although all the specialists said the chances were good that everything would be okay. I wasn't sure what issues the baby would face but I remember thinking, " I don't know if this is something I can do." Almost immediately I was reminded that this child was a miracle that we had spent years praying for. I also knew without a doubt that his birth was orchestrated by God, down to the last detail. Standing there in that parking lot God said, "This is the gift you have prayed for. I am offering him to you. The question is will you trust me and accept my gift?"

"Who am I to question the gift God is offering me? How do I say that isn't the gift I want and that It isn't good enough?" These thoughts hit me like a ton of bricks and I felt ashamed that I would consider throwing God's gift back in His face. I told myself that all God's gifts are good and that if this is the gift He offered then I would trust him. I didn't share any of these things with anyone else. I just talked to God and pondered them in my heart, kind of like I imagine Mary the mother of Jesus did when she thought of his future.

I was immediately filled with peace that comes only from God. That peace has stayed with me as we faced acid reflux testing, eye surgeries, developmental delays, the diagnosis of cerebral palsy, the two years we waited for G to take steps with the assistance of a walker, almost 8 years of specialists (too many to remember at times), 7 years of therapy, and years of daily stretching. Through all of it there was always the unknown looming before us. Will he ever walk unassisted or at all for that matter? Will today be the day he starts to have seizures? What does the future hold for this precious child God entrusted us to raise? Through it all there has been peace.

Do I get discouraged, tired, and frustrated--of course I do. I don't, however, lay awake at night worrying about whether G will be independent. God is constantly reminding me that He has this under control. All he wants me to do is stand right where He put me trusting Him to give me strength to withstand whatever He chooses for G. That is all he wants from any of His children--trust and obedience. So if you ever wondered how a parent of a special needs child manages life I can tell you that we do it like everyone else-one day at a time. Disability is a scary, terrible thing to most people looking in but the view from where I stand is amazingly beautiful, magical, and rewarding unlike anything you can imagine.

Notice

I am tired of living my life to please others. I have had all I can take of defending my relationship with Christ. I refuse to stand silently by while those close to me try to defend and excuse their sinful behavior. I'm through trying to censor the vile opinions and comments from people unwilling to respect my choices for my children. If my morals cannot be respected my child will no longer be part of your life. I am tired of being treated as the unruly child when I am the one in the right. I put you on notice satan I am going to call out sin when I see it. I am through dancing around the feelings of those living sinful lives. You have officially been put on notice.

Thursday, January 13, 2011

G's New Technology

For a while now I have felt that Sweet G would benefit from touchscreen technology of some type. We have looked at touch screen computers which I thought might work but I was hesitant about purchasing one because they aren't portable. Yes, you can get touchscreen laptops but again I felt that was just not the right fit for what I want for G. After reading on facebook that several people I know had bought iPads I was curious about what we could do with one.

G had some Christmas money from his two sets of very generous grandparents so we decided to go and look at iPads. After talking to a very tech savvy salesman and having him demonstrate a few things the iPad can do I knew I had found the perfect piece of technology for G.

Some friends have accused me of using my disabled child to get an iPad for myself. My oldest son is convinced that I bought it for me and my husband hasn't said so but I think he is skeptical as well. (I was even starting to think that too after getting hooked on the bubble game.) I can now say with 100% honesty that although I do love the iPad it's primary function is for homeschooling G.

I downloaded some apps for G to use and we had a blast doing school. We used an app of magnetic alphabet letters to do our phonics lesson, a math app to work on number recognition, and we reviewed sight words using an app that is compatible with the PowerPoint presentations I had already made for the laptop. G loves the independence the iPad gives him. He played one math game over and over. He would place the last piece where it went and quickly press the start button to redraft the game. I guess he was afraid that I was going to make him stop playing when he finished the round he was on so he would hit start before I could say anything.

We had so much fun doing school today! We really needed a day like today to get back in the groove after the holidays and the snow days. Yes, homeschoolers take snow days too! We can also take sunny days at the first sign of spring! Who wants to take spring break when the weather isn't nice? Being able to rearrange the school calendar to fit our family's life is one of the biggest benefits to homeschooling.

So, I am cleaning off the bookcases and decluttering our school. No more paper or books in our classroom! We are now a green homeschool with the help of one amazing little gadget.

G's New Technology

For a while now I have felt that Sweet G would benefit from touchscreen technology of some type. We have looked at touch screen computers which I thought might work but I was hesitant about purchasing one because they aren't portable. Yes, you can get touchscreen laptops but again I felt that was just not the right fit for what I want for G. After reading on facebook that several people I know had bought iPads I was curious about what we could do with one.

G had some Christmas money from his two sets of very generous grandparents so we decided to go and look at iPads. After talking to a very tech savvy salesman and having him demonstrate a few things the iPad can do I knew I had found the perfect piece of technology for G.

Some friends have accused me of using my disabled child to get an iPad for myself. My oldest son is convinced that I bought it for me and my husband hasn't said so but I think he is skeptical as well. (I was even starting to think that too after getting hooked on the bubble game.) I can now say with 100% honesty that although I do love the iPad it's primary function is for homeschooling G.

I downloaded some apps for G to use and we had a blast doing school. We used an app of magnetic alphabet letters to do our phonics lesson, a math app to work on number recognition, and we reviewed sight words using an app that is compatible with the PowerPoint presentations I had already made for the laptop. G loves the independence the iPad gives him. He played one math game over and over. He would place the last piece where it went and quickly press the start button to redraft the game. I guess he was afraid that I was going to make him stop playing when he finished the round he was on so he would hit start before I could say anything.

We had so much fun doing school today! We really needed a day like today to get back in the groove after the holidays and the snow days. Yes, homeschoolers take snow days too! We can also take sunny days at the first sign of spring! Who wants to take spring break when the weather isn't nice? Being able to rearrange the school calendar to fit our family's life is one of the biggest benefits to homeschooling.

So, I am cleaning off the bookcases and decluttering our school. No more paper or books in our classroom! We are now a green homeschool with the help of one amazing little gadget.

Sunday, January 9, 2011

Motherhood

Hard, heart breaking.
fulfilling, frustrating, fun, fleeting
Exhilarating, exhausting
Rewarding, remarkable,
Tiring, turbulent, terrific
Sad, Sweet, scary
Breathtakingly beautiful.
Miraculous, magical. . . .
motherhood.

Thank you God for sending Trey into this world and for giving me the privilege of being his Mom. He is so much more than I deserve. Then when we hastily took measures to prevent having another child You once again stepped in and demonstrated Your power, Grace, and love by sending G in such an unexpected way. Thank you for answering my prayers for a child and for answering the prayers of my child when he asked you for a sibling. I am awestruck at Your amazing love.

Motherhood

Hard, heart breaking.
fulfilling, frustrating, fun, fleeting
Exhilarating, exhausting
Rewarding, remarkable,
Tiring, turbulent, terrific
Sad, Sweet, scary
Breathtakingly beautiful.
Miraculous, magical. . . .
motherhood.

Thank you God for sending Trey into this world and for giving me the privilege of being his Mom. He is so much more than I deserve. Then when we hastily took measures to prevent having another child You once again stepped in and demonstrated Your power, Grace, and love by sending G in such an unexpected way. Thank you for answering my prayers for a child and for answering the prayers of my child when he asked you for a sibling. I am awestruck at Your amazing love.

Thursday, January 6, 2011

Decisions

Life is filled with choices. Every day we are faced with situations that require a decision. Some are as simple as deciding what to wear, while other choices are much more complex. Lately my life seems filled with situations requiring difficult decisions be made.

Each person has a unique way of looking at life and dealing with difficult decisions. We will all eventually make a bad choice. That is life. The problem comes in when we know what we are choosing is wrong. We not only bring consequences on ourself but our decisions put consequences on those around us. Nobody lives in a bubble. I affect my friends and family and they affect me. Our lives intertwine in such an intricate way that separation causes severe damage to each. Disease and damage passes from one to another unintentionally.

My goal is to base every decision I make on truth. That isn't popular. I have to separate my feelings and desires from the situation and do what I know is right. Sometimes I stand unable to help someone I love avoid the consequences of bad choices.

Ultimately we must face the decisions we make on our own. We may not in this life but we will eventually have to answer for them when we stand before Christ. Nobody will be there to defend me when I stand accused but Jesus. When all my sins are revealed He will say, "I paid the price. She is mine."

Decisions

Life is filled with choices. Every day we are faced with situations that require a decision. Some are as simple as deciding what to wear, while other choices are much more complex. Lately my life seems filled with situations requiring difficult decisions be made.

Each person has a unique way of looking at life and dealing with difficult decisions. We will all eventually make a bad choice. That is life. The problem comes in when we know what we are choosing is wrong. We not only bring consequences on ourself but our decisions put consequences on those around us. Nobody lives in a bubble. I affect my friends and family and they affect me. Our lives intertwine in such an intricate way that separation causes severe damage to each. Disease and damage passes from one to another unintentionally.

My goal is to base every decision I make on truth. That isn't popular. I have to separate my feelings and desires from the situation and do what I know is right. Sometimes I stand unable to help someone I love avoid the consequences of bad choices.

Ultimately we must face the decisions we make on our own. We may not in this life but we will eventually have to answer for them when we stand before Christ. Nobody will be there to defend me when I stand accused but Jesus. When all my sins are revealed He will say, "I paid the price. She is mine."

My Glass

For most of my life I have been the glass is half empty kind of person. I know that is a shocker to those of you who know me but it is true. That is one of the things I most dislike about myself. I really have tried to look at things from a positive angle and a lot of the time I am successful.

Lately I have had a hard time looking on the bright side. There have been several tragic events occur in the lives of people I love in the past few weeks and I feel as though life is out of control. My fear is that there is no way of avoiding complete and udder destruction. People I love are hurting and in trouble and I have no way of helping them. I feel as though I am tiptoeing through each day trying to avoid being destroyed by the fragments of my life and I am having a hard time finding anything positive in my life.

I know that those thoughts are not true. There are an abundance of blessings in my life. They are just hard to see through the pain I am experiencing. So, what do I do? I keep tiptoeing through each day until things change. I pray for the needs of those I love and hold tight to my Jesus knowing that He is bigger than any problem life can throw at me.

1 John 4:4........... But you belong to God, my dear children. You have already won a victory over those people, because the Spirit who lives in you is greater than the spirit who lives in the world.   NLT                                                                                           Psalm 29:11..........The Lord gives his people strength. The Lord blesses them with peace. NLT                                                       Eph. 6:16.............In addition to all of these, hold up the shield of faith to stop the fiery arrows of the devil. NLT


My Glass

For most of my life I have been the glass is half empty kind of person. I know that is a shocker to those of you who know me but it is true. That is one of the things I most dislike about myself. I really have tried to look at things from a positive angle and a lot of the time I am successful.

Lately I have had a hard time looking on the bright side. There have been several tragic events occur in the lives of people I love in the past few weeks and I feel as though life is out of control. My fear is that there is no way of avoiding complete and udder destruction. People I love are hurting and in trouble and I have no way of helping them. I feel as though I am tiptoeing through each day trying to avoid being destroyed by the fragments of my life and I am having a hard time finding anything positive in my life.

I know that those thoughts are not true. There are an abundance of blessings in my life. They are just hard to see through the pain I am experiencing. So, what do I do? I keep tiptoeing through each day until things change. I pray for the needs of those I love and hold tight to my Jesus knowing that He is bigger than any problem life can throw at me.

1 John 4:4........... But you belong to God, my dear children. You have already won a victory over those people, because the Spirit who lives in you is greater than the spirit who lives in the world.   NLT                                                                                           Psalm 29:11..........The Lord gives his people strength. The Lord blesses them with peace. NLT                                                       Eph. 6:16.............In addition to all of these, hold up the shield of faith to stop the fiery arrows of the devil. NLT


Wednesday, January 5, 2011

Another Day at the Doctor's Office

On New Year's Day G woke up not feeling well. He ran a high fever all day and night the first day and most of the day on Sunday. His fever broke on Monday but I decided I wanted the pediatrician to see him before his surgery to make sure his lungs are okay. People who have Cerebral Palsy are at a high risk for developing pneumonia because they usually don't have strong breath support and can't effectively cough to keep their lungs clear. Thank God we have avoided pneumonia and antibiotics with G so far but it is always lurking in the back of my mind when he gets sick.

T and I loaded G up and took him to see his doctor after lunch today. The office was packed because they had just opened up after lunch. After waiting in a long line I was greeted by a sign that said:
If your child has had or is having the following symptoms please let us know so we can provide you with a mask. Fever, Sore Throat, stomach ache, diarhea, ear ache, stuffy nose, achy joints.

I tell the nurse he has been exposed to flu, has all the symptoms of flu, and that I am pretty sure he has had the flu. She gave me a mask and said let him wear this to keep him from catching anything else but if you can't get him to wear it don't worry about it. I try to get G to wear the mask, T tries to get him to wear it but G is dead set against it.

I begin to talk the mask up after getting to the waiting room. "Oh, G look this mask has cute little cartoon band aids on it. It looks just like a doctor wears when they do surgery."

"I won't wear it."

"But G you can wear it and pretend like you are a doctor, don't you want to be a doctor?"

"No, I don't want to be a doctor. I want to be a psychologist."

At this point I along with two other mothers in the waiting area begin to giggle. T doesn't seem to think it is very funny and even proceeds to tell me, "Mom, stop laughing, it's really not that funny." I still say it was hilarious and very unusual for a 7 year old to say he wants to be a psychologist.

Immediately after this statement by G we get called back and are put into a room. The nurse returns and asks her routine questions then says, "G you know what I need to do now. I have to take your temperature. I know you don't like it but if you will sit still it will just take a minute." He really does not like having his temperature taken, his ears examined, his nose or throat looked at, or his eyes examined. He doesn't pitch a fit when it is required he just covers his ears and wiggles when they attempt to do any of those things. The nurse managed to get the temperature pretty easy without much fuss. The next thing she needed was a nasal swab for the flu test which took a little more effort on both our parts.

The pediatrician and her student assistant come in and confirm he does have the flu. His doctor goes into her usual spill about G's vulnerability and her desire to err on the side of caution when it comes to him. Then she said it. The thing I knew she was going to say but dreaded hearing. "I think we should not do surgery on Thursday. It is just too soon." Without missing a beat G says in a really sarcastic voice, "Thanks Fever, now I can't have my surgery!" Needless to say the two doctors and I had a good laugh at this amazingly funny little boy who reacted like he was missing out on Disneyland instead of major surgery.

Another Day at the Doctor's Office

On New Year's Day G woke up not feeling well. He ran a high fever all day and night the first day and most of the day on Sunday. His fever broke on Monday but I decided I wanted the pediatrician to see him before his surgery to make sure his lungs are okay. People who have Cerebral Palsy are at a high risk for developing pneumonia because they usually don't have strong breath support and can't effectively cough to keep their lungs clear. Thank God we have avoided pneumonia and antibiotics with G so far but it is always lurking in the back of my mind when he gets sick.

T and I loaded G up and took him to see his doctor after lunch today. The office was packed because they had just opened up after lunch. After waiting in a long line I was greeted by a sign that said:
If your child has had or is having the following symptoms please let us know so we can provide you with a mask. Fever, Sore Throat, stomach ache, diarhea, ear ache, stuffy nose, achy joints.
I tell the nurse he has been exposed to flu, has all the symptoms of flu, and that I am pretty sure he has had the flu. She gave me a mask and said let him wear this to keep him from catching anything else but if you can't get him to wear it don't worry about it. I try to get G to wear the mask, T tries to get him to wear it but G is dead set against it.

I begin to talk the mask up after getting to the waiting room. "Oh, G look this mask has cute little cartoon band aids on it. It looks just like a doctor wears when they do surgery."

"I won't wear it."

"But G you can wear it and pretend like you are a doctor, don't you want to be a doctor?"

"No, I don't want to be a doctor. I want to be a psychologist."

At this point I along with two other mothers in the waiting area begin to giggle. T doesn't seem to think it is very funny and even proceeds to tell me, "Mom, stop laughing, it's really not that funny." I still say it was hilarious and very unusual for a 7 year old to say he wants to be a psychologist.

Immediately after this statement by G we get called back and are put into a room. The nurse returns and asks her routine questions then says, "G you know what I need to do now. I have to take your temperature. I know you don't like it but if you will sit still it will just take a minute." He really does not like having his temperature taken, his ears examined, his nose or throat looked at, or his eyes examined. He doesn't pitch a fit when it is required he just covers his ears and wiggles when they attempt to do any of those things. The nurse managed to get the temperature pretty easy without much fuss. The next thing she needed was a nasal swab for the flu test which took a little more effort on both our parts.

The pediatrician and her student assistant come in and confirm he does have the flu. His doctor goes into her usual spill about G's vulnerability and her desire to err on the side of caution when it comes to him. Then she said it. The thing I knew she was going to say but dreaded hearing. "I think we should not do surgery on Thursday. It is just too soon." Without missing a beat G says in a really sarcastic voice, "Thanks Fever, now I can't have my surgery!" Needless to say the two doctors and I had a good laugh at this amazingly funny little boy who reacted like he was missing out on Disneyland instead of major surgery.